Personal Experiences

Sharing personal experences is a valuable form of therapy. Please feel welcome to share personal experiences or comments relating to your experiences of brain haemorrhage / brain injury. Below is a link to a similar personal experiences site. Post to the message board below to contribute to an extremely valuable UK resource for survivors of a Brain Haemorhage or Brain Injury, their families and carers.

Personal Experiences and Comments


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Brain Injury Narratives.  Personal experiences message board. This site is living proof of how sharing personal experiences can help. Dating back to 1995.

Nicole's Website  It took a few hours to realize I’d had a brain haemorrhage. I was in hospital for over 3 months. I’d had a stroke, Bell’s Palsy and several fits.

"This is one of the most uplifting sites that I have ever visited, after 12years on the internet." Walter.

Update   Crippled by cancer Nicole could have given up on life.....instead she's opening her diary to give others hope.

Jill Bolte Taylor As a Harvard-trained neuroanatomist, Jill Bolte Taylor has always known more about brains than most people. But when a brain haemorrhage triggered her own stroke, she suddenly had a front-row seat on the deterioration of the brain. Dr. Taylor recounts the details of her stroke and the amazing insights she gained from it in a riveting 18-minute video of her speech at the Technology, Entertainment, Design Conference in Monterey, Calif., last month. Her fascinating lecture includes a detailed explanation of the differences between the left and right sides of the brain, complete with an incredibly cool prop — a real human brain.

Thank's for the link Jon.  ^(^ A must vist.....

Andrew Brereton   I was the father of a child who suffered with profound brain injuries, which caused a mixture of symptoms, - some of quadriplegic cerebral palsy and some of autism, although neither of those diagnoses do justice to the true nature and severity of his brain injuries! Unfortunately, Daniel passed away four years ago, suffering a series of brainstem strokes. We always knew that for someone with his level of disability, the length of his life would be severely limited, but unfortunately, knowing that something is going to hurt, doesn't actually stop it hurting when it happens!

What if ?  What if you woke up one day and you didn't know who or where you were? Or seemed to have half the body you had before? And what if you couldn't even tell people about it?

Eliza Ellerby WORKING hard and playing even harder, Eliza Ellerby was a typical student. When she wasn't attending lectures or studying for her history degree, the 21-year-old was busy with her role as chairman of the Edinburgh Charity Fashion Show 2008, playing for the university hockey team or catching up with friends.

Chris Ratsuszny  Doctors treated Chris Ratsuszny's giant brain aneurysm using a new laser technique.

Coping with Epilepsy  Kina and Lee Leitner discuss having a daughter with intractable epilepsy.

26/06/2007  It was the day that time suddenly stood still for the offshore worker Lee Cassidy, as he literally hovered between life and death after suffering a sub-arachnoid haemorrhage or stroke.

Cora Anderson  Brain aneurysms are challenging to treat, especially since a patient may have no symptoms until the aneurysm ruptures and becomes a life-threatening condition. This edition of Inside Access follows three doctors and their patients, Roxie and Cora, at the UW Medicine Brain Aneurysm Center at Harborview. Cora receives endovascular treatment, while Roxie's surgery includes a technique of bypassing the brain's blood vessels with a graft from her radial artery. - ResearchChannel is a nonprofit media and technology organization that connects a global audience with the research and academic institutions whose developments, insights and discoveries affect our lives and futures.

Alberto Contador  A crash in the Tour of Asturias stage race in 2004 saw Contador end up in hospital, where doctors discovered he was about to suffer a brain haemorrhage. After a life-saving operation, he returned to training six months later and soon began fulfilling the promise first shown by his under-23 national time trial crown, when he was still only 19 years old.

Dudley Rigden  A Bishopstoke man who feared he might never step out again is to go on a sponsored walk to raise funds for the stroke unit at Winchester hospital.

Richard Hammond  Eighteen months after his crash, Richard Hammond has revealed that his recovery is far from complete. As Lucy Atkins reports, he is not the first survivor of head trauma to experience drastic alterations in mood, memory function - and even personality.

Stephanie Smith  A CALL centre worker saved the life of a man who suffered a massive brain haemorrhage - 400 miles away.

Liz Traill   A BASINGSTOKE mum is to take part in her second London Marathon after overcoming a brain haemorrhage that could have killed her.

Carol Loch  It was Wednesday 26th January 2005 I was at home doing my housework. My daughter Pamela should have been at work but was on sick leave due to having a chest infection.  All of a sudden I felt a strange sensation go through my body. I called upstairs to Pamela that something was wrong, but I didn't know what. 

Alex Ruby  A BRAVE youngster from Mablethorpe, suffering with an incurable brain tumour, has written a collection of poems he is hoping to publish. Alex Ruby, 16, from Victoria Road, first discovered he had the terminal illness in February last year and since then, has written 51 poems covering everything from the tumour to the importance of laughter.

James Hinkins  Blues' star wants to help a family member who suffered a severe brain haemorrhage. Stars of past and present will descend on Goldington Road on Sunday, April 27 to celebrate the career of Bedford Blues player James Hinkins. James is hoping his testimonial will raise at least £8,000 for charity and also for his brother-in-law, who suffered a near fatal brain haemorrhage back in November.

Silent Killer  Family and friends of an Aberdeen student who died from meningitis have been campaigning to increase awareness and raise funds for a cure to the 'silent killer'. Twenty-two-year-old Saleem Akintoye's body was found in his students halls of residence.
The sister and the girlfriend of Aberdeen meningitis victim Mr Akintoye today launched an awareness drive for the disease that can kill in under four hours.

Lorraine Thomas  LOSING three and a half stone and dropping six dress sizes is no mean achievement. But it is an amazing feat when you realise the catalogue of medical traumas slimmer Lorraine Thomas has survived. The 51-year-old has suffered two brain haemorrhages, a stroke, leg thrombosis, been shot with an airgun and had her right leg amputated at the knee.

Divorce  Soon after Karen Mears and Kevin Ware married in 1999, he nearly died of a brain haemorrhage. When he recovered she decided he was no longer the man she loved. Shortly after that Karen moved in with the best man. Her behaviour has divided their family and friends. Here, each of those involved give their different stories ...

Stephen Clarkson  ONE of the heroes of the Glasgow airport terror attack is fighting for life after a brain haemorrhage. Update

Alana Campbell  The doctor thought I had food poisoning but blood was leaking into my brain.

Brain Dead  Woman Diagnosed as "Brain Dead" Walks and Talks after Awakening.

Wrong  Heartbroken Mark Hibberd is mourning his wife Linsey after a shocking series of hopelessly WRONG diagnoses by a procession of doctors.

Alex Mallinson  A girl of five has died after collapsing in her school playground in front of her horrified classmates.

John Tierney  He was as strong as a wagon. Now he is as weak as a child.

Videoplay  Part 1 of a brain aneurysm survival story of 1988.

All the Good Things  I just want to share a story with you that's making it's way around the Internet again. It's a story by Sister Helen Mrosla, a Franciscan nun, that has always touched my heart and reminds me about what's really important in this busy life of ours. This story, as with the Teddy Stallard story, is not just for teachers ... it's about the power of acknowledgment to help us each remember what a REAL difference our kind words and recognition of each other as human beings can make.

Charity Night This event has been organised by fundraising champion Derek Gaskell and businessman Andrew Dickson to raise money for two causes close to their hearts.Both men have been successfully treated for prostrate cancer and now want to raise cash to buy a special bone scanner machine for the Royal Bolton Hospital urology department where prostate sufferers are treated.

Mr Gaskell also wants to raise money for his charity the Brain and Spinal Injury Centre (BASIC) which he set up in 1983 to treat those who suffer from diseases or injuries affecting the brain and spine, after his wife, Dorothy, suffered a brain  haemorrhage. Following his wife's recovery he raised millions of pounds to open - and run - the BASIC centre near Hope Hospital in Salford which now treats people from all over the country.

Pete Nash  In 2004 Pete Nash, a loving husband and father of 3 boys, was diagnosed with a large AVM in his brain. It has caused him to suffer with epilepsy and as a result he cannot work, drive or do any of the sports he so loved doing. His memory has been affected also making it difficult for him to remember short term things, like what he did yesterday!

Russell Watson Opera star Russell Watson said he thought he was going to die when he was rushed to hospital for emergency surgery on a brain tumour. The singer, 41, underwent a three-hour operation at The Alexandra Hospital in Cheadle, Cheshire, seven weeks ago just 12 months after doctors removed a benign tumour.

Stroke Carers in PTSD worry  People providing care for those who have had a stroke may suffer from post-traumatic stress disorder (PTSD), new research at Durham University has shown.

A need to feel in control   Despite the differing appearances of those around me – ranging from young to old, very disabled to very able – we share a rare condition of malformation of blood vessels, called a cavernous angioma, in our brains. We were all born with them. Some, like me, have had brain haemorrhages from which we have recovered fully. Others, like the woman in the wheelchair, have been less lucky.

Sex after Stroke It is not impossible to have a satisfactory sex life after a stroke. Some frustration may surface, but it’s all about knowing the limit, writes consultant neurologist LIM POH HIN.

Steve Charles Trapped in a world of silence, paraplegic Steve Charles thought he would never speak to his loved ones again. But now a hi-tech breakthrough has let him find his voice once more – thanks to the tiny movement of his left eye.

Allison Tordoff  Five years ago Calderdale mum Allison Tordoff was told she had epilepsy. She tells Sarah Kelly why she is backing a new campaign to help women across the country with the condition. A Brain haemorrhage left Allison Tordoff with a frightening condition she will have to deal with for the rest of her life.

My son was woken from a 3 year-coma  It was the moment Sienie Viljoen had waited three long years to see.

Standing by the hospital bed, where her son Louis lay in a coma after a terrible road accident, the 57-year-old noticed his eyes flicker and then focus.

Dan Jensen  Man with Brain Aneurysm saved with risky surgery.

Gordon Roddick  In his first interview since her death, Gordon Roddick talks movingly about his wife Anita, their life together and his plans to protect her legacy.

Discovery Health  Sleeping Pill Wakes Woman After 2 Years in Coma. A dose of the prescription sleep aid Ambien had the opposite effect on one French woman, awakening her from a two-year coma. I watched this documentary today Sunday 27/05/07 amazing.

Support for brain injured children THE mother of a North teenager who suffered a brain haemorrhage that left him in a wheelchair for two years has welcomed a new project aimed at offering support to young people who have suffered brain injuries.

Presumed Consent  It is a question no parent would want to be asked if their child was dying: would you allow their organs to be used for transplant to save other lives? Yet that is the traumatic decision Lauren McDiarmid and her husband, Donald, were faced with as they sat with their 17-year-old son David, who was on a life-support system in a ward in a Glasgow hospital after suffering a brain haemorrhage.

Dave Leonard  A Gourock man today told how he survived a brain haemorrhage that made him lose all concept of time.

Personal Stories The insights and strategies acquired through the grueling process of recovery can be invaluable. Here are personal accounts of the agony, hope and lessons hard won of those who have survived a head injury.

A Message from your Brain   Sound advice from Stephanie St. Claire.

Jane Phelan  Jane Phelan was a vibrant and respected TV journalist when, at the age of 35, she had a massive brain haemorrhage which changed her life forever.

Edwyn Collings  THE Scots pop singer Edwyn Collins has returned to the studio for the first time since suffering a near-fatal double brain haemorrhage last year.

Update When Edwyn Collins had a brain haemorrhage - and then another - the pop star's life seemed to be as good as over. Then he found an amazing route to recovery. Ian Herbert tells his story Published: 03/08/2007.

Update  Edwyn Collins yesterday told for the first time how he "came back from the dead" after a brain haemorrhage.Two years later, the former Orange Juice frontman has taught himself to talk, draw with his left hand and make music again. 18/08/2007.

Lewis Pescott  BRAVE Lewis Pescott, who suffered a deadly brain haemorrhage when he was just nine, has written a heartfelt postcard to health bosses. 03/08/2007.

Tragedy  A SCHOOLGIRL has collapsed and died suddenly from a suspected brain haemorrhage after complaining of dizziness and headaches.

Charlotte Rose  A NINE-YEAR-OLD girl who raised thousands of pounds for a hospital ward after suffering a brain haemorrhage has been nominated for an award.

Coma  The Man Who Slept for 19 Years.

The Secret Life Of a Manic Depressive A guide to being a mentally Interesting girl navigating the Labyrinth of the NHS Mental Health Services.

Michael Rasmussen  Ended the penultimate weekend of the Tour de France in the yellow jersey he won a week ago in the Alps, but his fine performance on this first day in the Pyrenees has made him look like a possible winner in Paris next week rather than a pretender to the Tour crown. Michael returned to the sport after a brain haemorrhage almost cost him his life in 2004. He rides with a titanium plate on his head since making his return in 2005 with a win in a stage of the Tour in Australia.

What if ?   What if you woke up one day and you didn't know who or where you were? Or seemed to have half the body you had before? And what if you couldn't even tell people about it?

Barbara Gushin  This is a real story of a trauma that changed my life forever. I sustained a traumatic brain injury and a broken hip. This video is for you to understand the emotions and feelings one may endure with this kind of a trauma.
I wrote these words at a time I was detached from the world around me and found this was the only way to communicate to myself what was happening with me.

Nicola Jenkins  My name is Nicola Jenkins and I'm 37 years old.  On May 24th 2006 whilst on holiday in Turkey I suffered a SAH due to ruptured brain aneurysm.This left me with many problems which luckily are resolving with time.

Jeya Calder  Fundraising for my loved one – my dad, Donald Macgregor Forbes, who died very suddenly in 1996 from a brain aneurysm.

Clarke Lister  Drop-in centre opens its doors. The Clarke Lister Brain Haemorrhage Foundation, in Peterlee, has secured £9,966 of Lottery funding to run a weekly drop-in at Oakerside Park Community Centre in the town.

Help Sam  SAM Formby remembers lying in a hospital bed when he was 16 thinking he was dead. He had suffered a brain haemorrhage and spent two months intensive care followed by almost a year in hospital, including nine months at The Neurological Rehabilitation Unit in Liverpool.

Kylie and Stone  Hollywood actress Sharon, 49, is lucky to be still alive after suffering a stroke and a brain aneurysm in October 2001 which saw her hospitalised for seven months with bleeding in her brain. Pop princess Kylie, 38, was forced to postpone her Showgirl tour when she was diagnosed with breast cancer in 2005. They have both bravely overcome their very personal battles with killer illnesses.

Daryl Chambers  Ouch my brain, a personal account of life after a traumatic brain injury.

Dave's Story   This all started with an ear infection.

Tommy McHugh  Until six years ago a Liverpool builder, with a rough past as a street fighter, and no apparent artistic inclination. Now he is a man with a passion, full of emotion, driven to create. “My mind is like a volcano exploding with bubbles,” he says in a gentle Scouse accent, “and each bubble contains a million other bubbles, and then another million bubbles of unstoppable creative ideas.” He spends his days – and most of his nights – painting, sculpting and carving. So what happened six years ago to bring about this transformation? The extraordinary answer is: a Brain Haemorrhage.

Sam's Brave Battle A Former Horsham resident has battled back from near death and aims to raise cash for the hospital where doctors saved his life. Sam Noel-Paton had a subarachnoid brain haemorrhage - the most serious – which kills one in three people who suffer one.

Maria Gaughan  MUM-OF-SIX Maria Gaughan died of a massive brain haemorrhage after being wrongly diagnosed with a water infection. Her family have won an out-of-court settlement against Whiston Hospital but say no amount of money could make up for their loss.

Marilyn Curtis "In Adelaide hospital, I had my skull cut open and now have a plate holding my skull together. I was 47 at the time when I had brain haemorrhage and now am coming onto 55. The incident didn't change me. The good thing is that I know where I am going and what I have to do. It's like someone is in my head and tells me what to do."


Surviving a Stroke  Corporate lawyer Farahneza Mohd Hilmi was at home nursing her new-born baby when she suffered a stroke. She was 32 and working for Bank Simpanan Nasional. Farahneza suffered a haemorrhagic stroke and lost the use of both her legs and her right hand. Her speech was affected and she was bedridden. Shocked family members, not knowing what to do, spent thousands of ringgit for four years seeking traditional treatment with the best in town, but to no avail. Then two years ago, they came to know of the National Stroke Association of Malaysia, better known as the Nasam House.

Question Answers The mother of 40-year old female patient suffered a subarachnoid haemorrhage at the age of 60. The patient has been told that subarachnoid haemorrhage "runs in the family". Is there any evidence to support this?


CJ Noble MRC, BA I am a traumatic brain injury survivor. Throughout my lifetime, I have taught myself how to overcome many insurmountable odds. These strategies have helped me to prosper and succeed. Last month, I decided to start a blogat The topics I share will provide both hope and comfort to individuals and families from all walks of life. I would encourage you to visit my site, where I share from my experience, strength and hope.


Richard Hayes  He thought he would never walk again. Three years ago, the 55-year-old suffered a brain haemorrhage and had to learn everything again – including how to wash and get dressed. But after 12 months of intensive physiotherapy and hard work, he has now taken his first steps. 07/03/07.

Sally Wilson  My name is Sally Wilson and I'm a features writer based in Edinburgh. I write for the UK's top women's magazines and national newspapers including Take A Break, Woman, love it!, She, Reveal, Pick Me Up, the Daily Mail and the Mirror, Sun and the Record. I’ve spoken to Walter who’s agreed to let me post this notice on his site as I’d be really interested in talking to you about your individual experiences of either having brain haemorrhages or strokes or caring for those who have had them.

 

All in the mind  Brain surgery is cloaked in mystery, but Neil Kitchen says it can be a 'simple procedure'. Melissa Viney went into the operating theatre to find out.

Brain Aneurysm Foundation Brain aneurysm survivors are a small population of people, but they are growing larger as medical technology continues to grow and early detection and treatment of brain aneurysms becomes more prevalent.

Aneurysm Stories  Inspiring stories about how patients have handled the diagnosis and treatment of their brain aneurysms.


Brain Aneurysm Connection   Welcome to the Brain Aneurysm Connection.

Sue Douglas  SIX months ago 49-year-old Sue Douglas nearly died. It is hard to believe this as I watch the blonde, slim, former newspaper editor leading her horse Ally around the stable yard. It is situated next to the large Oxfordshire farmhouse she shares with her husband, the academic and historian Niall Ferguson, and their three children: Felix, 12, Freya, 11, and Lachlan, seven.

Mary Miller  A KIND-hearted Leven woman has been recognised for her care and devotion to her handicapped husband by being voted the Headway Carer of the Year at a national awards ceremony.

Iain Sutherland  Tells his story of recovery from a brain injury.

Gary Steer  Gary Steer, from Gloucester, had the footballing world at his feet when he was 10 years old. Playing for a successful local junior football team, everything was going well for the young striker and he even dreamt of playing for his beloved West Ham United. Then, aged 11, his life turned upside down when he suffered a brain haemorrhage following a freak cycling accident.

Kevin Linsley  A neurosurgical technician at the Royal Hallamshire Hospital in Sheffield, undertook a special forces challenge in the Lake District to help to raise funds for the Neurocare charity's "Brainwave Appeal".

Aphasia Speaking with a slight hesitation, and occasional difficulty in pronunciation, Alan explains, "Before the brain haemorrhage, nine years ago, nothing at all was wrong with me. I was Head of Development for a national charity. Then I got a headache in the middle of the night, and was sick. I was taken into hospital and operated on."

Jeff Sebell   TBI survivor who was injured 30 years ago shares his experiences with Inspirational Talks and he does challenge you -- in a good way.

Miracle Mum A YOUNG mum who was unaware she had given birth has cuddled her son for the first time.

Nicola Sayles suffered a brain haemorrhage, aneurysm and stroke when she was pregnant and was on the brink of death as baby Callum was delivered by caesarean two months ago. Hours after the birth, Nicola, 20, underwent life-saving brain surgery.

Susan Aldworth  Susan was admitted to hospital just over two years ago with a suspected brain haemorrhage. Her brush with death provided new inspiration for her work as an artist. Intrigued by the images of the scans of her brain, Susan has incorporated what she saw into her work.

Christine Collins  A mother who was given no hope of survival has defied the odds after suffering a large aneurysm.

Karen Steven  Is an accomplished fiddler and step dancer. Her distinctive rhythmic style of playing is undoubtedly due to her training as a teacher of highland dancing which, in turn, kindled her interest in step dance. Karen is an experienced tutor in both fiddle and step dance, teaching regularly at summer schools and festivals both in Scotland and abroad. However on the 20th October 2005 she suffered a sub-arrachnoid haemorrhage. Since then she has recorded an album as a fund raiser for neurosurgery in Aberdeen Royal Infirmary as a token of thanks for the excellent care and treatment.

Ian Graham  A man who suffered a brain haemorrhage after he was attacked on a night out is now taking part in a half-marathon.

Brain Hospital  Only surgery can cure my headache.

Gran pens letter to offer help  After a series of life-changing events, including a brain haemorrhage, an Oxfordshire woman has published a book to give help to other people bringing up their grandchildren.

REM  Since quitting REM in 1997 following a brain haemorrhage, Berry has appeared with the band just three times, at special, brief one-off occasions. It's currently unknown what the band will play at the event, although manager Bertis Downs revealed they're "considering recording something for a yet-to-be-announced charitable project."

Neil Young  Rocker Neil Young, treated for a "dangerous brain aneurysm," is expected to make a full recovery.

Stories  Who am I?? Where am I?? Aneurysm Stories.

We need more help  A DESPERATE mother who survived a brain haemorrhage is struggling to cope with her disabled daughter says she fears what she may be driven to do, if she does not receive help. 07/09/06.

Yvonne McQueen's Story It was a terrifying experience. I think that anything to do with the brain is a worry, it controls so much and I felt as if I had a ticking time bomb waiting to explode.

Vanessa  A Woman who spent two days lying on her floor with a brain haemorrhage has pledged to save the lonely of Crawley.

 

Joshua Cooper  Joshua suffered a massive brain haemorrhage at the age of nine and spent weeks in a coma in an intensive care unit in Cambridge.

My dad the hero  Devoted husband who left his dream job to care for his paralysed wife has been hailed a hero by his daughter.

Mountain to climb  A BRAVE chef who nearly died from a brain haemorrhage will take his first steps for six years in an incredible mission to climb Snowdon.

Green Widow  Welcome to greenwidow.com. I am Rachel Green, the green widow in question, and in more ways than one. Apart from the obvious name connection, I was totaly naive and ignorant of anything to do with bereavment until my husband died suddenly from a brain haemorrhage in 2001.

Coma  The Man Who Slept for 19 Years. Terry Wallis' 19-year journey back to consciousness is a remarkable story. But in June 1984, the time of his car crash, he was just another statistic; one more name on the list of 1.5 million Americans who sustain a brain injury each year. Perhaps it's going too far to say that Wallis was one of the fortunate ones, but he did at least survive his brain injury. Each year in America 50,000 people are not so lucky.

Nolan Stacy  I have been having migraine headaches for about 2 years. The one that I had on July 5. 2002 may be the reason that I am here today.

Pinkertons Progress   It is strange to say that my life changed for the better on May 2nd 1996 as the result of an Acute Cerebellar Infarct.  Updated 24/11/05   A must to vist.

Karen's Story   SIX inches of platinum, no thicker than two human hairs, is keeping Karen Morgan alive.

Woman's Hour  "Nearly dying was the easy part" - the words of actress Jane Lapotaire who suffered a brain haemorrhage four years ago. She was lucky to survive. Jane joins Jenni to tell her about the stresses and strains of living day to day with a brain that sometimes feels as if it's 'outside of her body'.

Jane Lapotaire "But I couldn't leave my son with that terrible legacy. Not a day went by, though, after my brain haemorrhage, when I didn't think of death. When you have come so close to losing your life, it's always there," she says, patting her right shoulder.

Stepped Off   This is the story about my near fatal motorbike crash. And my journey with carol (my wife) back to health. It was meant to be a short motorbiking holiday in Scotland with friends. It was also the first time Carol and I had been apart since our wedding in February. The morning of 14th July 2000 was like any other morningand I was looking forward to the ride home to Leeds. As it turned out, I didn't leave Scotland for another six weeks. I woke from coma in mid-August. This is the story of my journey back to health, after my near-fatal accident, and the struggles and the laughs Carol and I have had along the way.

Mark's Story  Mark suffered a massive brain haemorrhage on 26 June 1998. He spent a month unconscious on life support and a further three months in Hospital before being allowed home.

If there is anyone reading this who has just suffered a haemorrhage and is feeling pretty low, take heart, things do get better, but it does take time. If anyone would like to e-mail me and talk about my experiences or ask any questions please feel free to do so. shakeshaftm@ntlworld.com

Aneursym    In 1986 I had a brain aneursym, here is my story.

Anita  On the 11/11/03 Anita suffered a post operative brain injury. It was such a quick thing to happen but it's now a long journey of recovery. Anita has made a phenomenal effort to survive but the recovery is a million times more difficult. This website was started as a means for personal expression during that recovery.

Alan's Story  Alan suffered a sub-arrachnoid haemorrhage in March 1996 aged 27!

Dean Rice   'A sneeze and then my boy was gone'. A WELSH teenager died after a sneezing fit on a camping holiday with his family, it has emerged. Soccer-mad Dean Rice, 18, started sneezing and his parents thought he was suffering from a hay fever.

Marriage  Marriage to Someone with Schizophrenia. One husband's perspective.

I had no prior warning that the person that I chose to be my life-mate would become mentally ill. There were, and still are, no warning signs who will or will not get this disease. I don't know which is harder to deal with, a child with schizophrenia or a wife with the disease. Both are not easy. I would not wish this "hell" on anyone I know, now or in the past. In High School there was one person in particular who went out of his way to annoy me. I would not want him to go through what I have.

Robin  The following story is an excerpt of a taped dialogue between cancer patient, Robin Jones and his physiotherapist, Mary Douglas. It was taped at St Catherine’s Hospice in Crawley, Sussex on 5 September, 1992. It was Robin’s desire to record some of the discoveries he made during his recovery from a brain haemorrhage some 7 years previously, first in re-learning how to speak and later in the control of cancer pain. He hoped they could be of value to those suffering a similar plight or to those professionals working in this area of research or clinical practice.

Gill A former teacher, who was left unable to read, write, speak or even understand conversation following a brain haemorrhage, is preparing to see her first play for adults staged.

Problems with alcohol?  Alcoholism is a rough word to deal with. Yet nobody is too young (or too old) to have trouble with booze.

Acupuncture  There have been several controlled studies confirming that acupuncture is effective in treating CHD and post stroke patients. One study carried out at the Lund University Hospital, Sweden (1) involved 78 patients with severe hemiparesis (paralysis of one side of the body) within 10 days of stroke onset. 40 patients received daily physiotherapy and occupational therapy, and 38 patients received acupuncture treatment twice a week for 10 weeks. Patients treated with acupuncture recovered faster than the others, with better balance and mobility, and fewer days spent at hospitals/nursing homes.

 

Email : walter@brainhelp.co.uk

 



 

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